FOI REF: FOI-2023-1441
You asked
Please could you provide me with the number of documented cases of childhood dementia in the UK spanning from the beginning of record-keeping until the most recent available data? If possible, please could you categorise the data by each genetic disorder that is known to cause childhood dementia?
We said
Thank you for your request.
Unfortunately, we do not hold data on dementia diagnosis. NHS Digital may be able to assist with the provision of childhood dementia or diagnosis data. They can be contacted via email at enquiries@nhsdigital.nhs.uk.
Information on the number of cases of childhood dementia may also be available from Dementia UK. You can contact them by emailing info@dementiauk.org.