We produce mortality statistics that are published under the National Statistics logo, the designation guaranteeing that those outputs have been produced to high professional standards set out in the Code of Practice for Statistics and have been produced free from any political interference.
This guide provides information on the collection, production and quality of mortality statistics.
Provisional counts of death registrations
To meet user needs, very timely but provisional counts of death registrations in England and Wales are published as follows:
Provisional counts of weekly death registrations by sex and age group and regions (within England) and Wales (published 11 days after the week ends)
Provisional counts of monthly death registrations by regions (within England), unitary authorities, counties, districts and London boroughs (published on the fourth Tuesday of the following month); figures remain provisional until they are updated to final figures following the publication of final annual statistics
Quarterly mortality report, England provides timely surveillance of mortality in England with provisional death registration and death occurrence data broken down by sex, age and underlying cause
Provisional figures have not been subject to the full quality assurance process.
Annual mortality statistics
Annual mortality statistics (based on deaths registered in a calendar year) are published in separate packages to enable the timely release of statistics.
Deaths registered in England and Wales (Series DR) provides death registration statistics for the reference year by numbers of injury and poisoning deaths by external cause of death, age, sex, marital status and rates for England and Wales.
It also includes numbers and rates for regions (within England), unitary authorities, counties, districts, London boroughs and local health boards (within Wales).
Numbers of deaths by single year of age and sex for England and Wales (1963 onwards) and the UK (1974 onwards) are also included.
Prior to deaths registered in 2018, some of these elements were produced in a separate publication titled ‘Death registration summary tables’, these have now been combined with the ‘Deaths registered in England and Wales’ release.
Mortality statistics: area of usual residence provides death registration statistics in the UK and its constituent countries (numbers and rates) by regions (England), unitary authorities, counties, districts, London boroughs, health areas, council areas (Scotland) and local government districts (Northern Ireland).
Detailed annual mortality statistics are available in an explorable dataset for England and Wales including:
number of deaths by age group, sex, area of usual residence, leading cause of death and detailed underlying cause classified using the Tenth Revision of the International Classification of Diseases and Related Health Problems (ICD-10)
figures are available for all areas within England and Wales by regions (England), unitary authorities, counties, districts and Middle layer Super Output Area (MSOA)
age-standardised mortality rates (ASMRs) and percentages of all deaths, or within the whole population, sex or age group
We also publish more detailed annual mortality statistics in the following releases:
20th Century mortality files provides death registration statistics for England and Wales by sex, age group and underlying cause
21st Century mortality files provides death registration statistics for England and Wales by sex, age group and underlying cause
Deaths related to drug poisoning provides number of deaths by cause of death, sex, age and substance(s) involved in the death by country for England and Wales; it also includes rates for deaths related to drug misuse by regions (within England), unitary authorities, counties, districts, London boroughs and average registration delay by local authorities (England) and unitary authorities (Wales)
Alcohol-related deaths in the UK provides numbers and rates of alcohol-related deaths by sex, age group and individual cause of death by UK and its constituent countries and regions (within England)
Suicides in the UK provides suicide rates by sex for the UK and its constituent countries; there are numbers and rates of narrative conclusions by sex and regions (within England) and Wales; it also includes numbers (registrations) and rates of suicides and median registration delay for local authorities (England) and unitary authorities (Wales); there are numbers of occurrences and rates by age and sex by country for England and Wales
Avoidable mortality provides numbers and rates by sex and age by country for England and Wales for deaths from causes that are considered avoidable in the presence of timely and effective healthcare or public health interventions
Excess winter mortality provides selected provisional and final numbers and indices by age, sex and cause for England and Wales, regions and local authorities (within England) and unitary authorities (Wales)
Deaths of homeless people provides numbers by sex, age, underlying cause and region in England and Wales
Child mortality statistics provides data on stillbirths, infant deaths and childhood deaths; this publication is based on infant deaths occurring in a calendar year, our User Guide to Child mortality provides further information
Infant mortality (birth cohort) tables presents final statistics on births and infant deaths based on babies born in a calendar year that died before their first birthday linked to their corresponding birth notification and their corresponding death registration.
Unexplained deaths in infancy provides data on both sudden infant deaths and deaths for which the cause remained unknown or unascertained
From 1974 to 2005, mortality statistics were published in the annual reference volumes, DH1, DH2 and DH4. From 1993 to 2005, figures were based on deaths occurring annually in England and Wales in the reference year. Prior to 1993, figures were based on deaths registered in England and Wales in the reference year. In 2006, these three volumes were replaced by a single publication, Mortality statistics: deaths registered in England and Wales (Series DR) based on deaths registered in a reference year.
Vital statistics: population and health reference tables provide annual mortality statistics for the UK and its constituent countries with some measures available back to 1838. This release also provides an international comparison of the crude death rate.
Mortality statistics for Scotland are available in the Vital Events Reference Tables for Scotland.
Mortality statistics for Northern Ireland are available in the Annual Report of the Registrar General for Northern Ireland.
The Mortality statistics Quality and Methodology Information report contains important information on:
the strengths and limitations of the data
the quality of the output: including the accuracy of the data and how it compares with related data
uses and users
how the output was created
The ONS policy on protecting confidentiality in birth and death statistics is available.
Our website provides a comprehensive source of freely available statistics on life events and other ONS products.
Special extracts and tabulations of mortality data for England and Wales are available to order (subject to legal frameworks, disclosure control, resources and our charging policy, where appropriate). Such enquiries should be made to the Mortality Analysis team (firstname.lastname@example.org or telephone: +44 (0)1633 456935). All user requested data will be published onto the website.Nôl i'r tabl cynnwys
The registration of life events (births, deaths, marriages and civil partnerships) is a service carried out by the Local Registration Service in partnership with the General Register Office (GRO) in Southport.
Mortality statistics are based on information recorded when deaths are certified and registered. Most deaths are certified by a medical practitioner, using the Medical Certificate of Cause of Death (MCCD) Annex A. This certificate is taken to a registrar by an informant – usually a near relative of the deceased.
Deaths should be registered within five days of the date of death, although there are a number of situations when the registration of a death will be delayed, as described in Section 6.
In certain cases deaths are referred to, and sometimes then investigated by, a coroner. The coroner sends information to the registrar and this is used instead of that on the MCCD to register the death. In some cases additional information provided on Part B of the coroner’s certificate (Annex C) is forwarded to Office for National Statistics (ONS) by the registrar. Accordingly, the information used in ONS mortality statistics normally comes from one of four sources:
details supplied by the doctor when certifying a death, for example, whether the body was seen after death, cause of death, when the deceased was last seen alive, whether a post-mortem was carried out
details supplied by the informant to the registrar, for example, occupation of deceased, sex, usual address, date and place of birth, marital status, date of death, place of death
details supplied by a coroner to the registrar following investigation, for example, cause of death (following post-mortem), place of accident (following inquest); in the case of deaths certified after inquest, the coroner supplies the registrar with all the particulars that would have been supplied by the informant
details derived from information supplied by one of the above, for example, age of deceased is derived from date of birth and coded cause of death
Details are also supplied by the informant on the spouse of the deceased (only if the deceased is either married or civil partnered), for example, name, date of birth, occupation and employment status. If these details are supplied by the coroner rather than the informant then occupation and employment status will not be supplied.
The death registration process in Northern Ireland is similar to that in England and Wales, where deaths must be registered within five days, with the exception of those referred to a coroner. However, Scotland has a slightly different process, which allows up to eight days for the registration of a death, in which time the cause of death for accidental, sudden or suspicious deaths may not yet be established. These deaths are still registered within this period, where cause of death would later be updated in the Register of Corrected Entries (now the Register of Corrections Etc (RCE), following an investigation.Nôl i'r tabl cynnwys
The majority of mortality publications are now based on registrations. Office for National Statistics (ONS) continue to take an annual extract of death occurrences in the autumn following the data year, which is used for seasonal analysis of mortality data and several infant mortality outputs.
Since 2006, Series DR has been based on the number of deaths registered in the calendar year. Between 1993 and 2005, the figures in annual reference volumes relate to the number of deaths that occurred in the reference period. Prior to 1993, publications gave numbers of deaths registered in the period. More details on these changes can be found in the publication Mortality statistics: deaths registered in 2006.
The numbers of registrations for a year that actually occurred in previous years are shown in Table 1.
that occurred in
|Percentage of those|
Download this table.xlsx .csv
The numbers of late registrations not included in the death occurrence dataset are shown in Table 2.
|Year death occurred||Number of late registrations not included in occurrence dataset|
Download this table.xlsx .csv
The numbers of late registrations by year of occurrence are subject to future revisions due to the likely addition of late registrations; revisions could extend back a number of years.Nôl i'r tabl cynnwys
The population estimates used to calculate mortality rates are mid-year estimates of the resident population of England and Wales based on the Census of Population. Our mid-year population estimates are updated figures using the most recent census, allowing for births, deaths, net migration and ageing of the population.
The population estimates used are the most up-to-date when rates are produced. The specific population estimates used to calculate rates are detailed alongside published tables. Sometimes it is necessary to revise mortality rates following population estimate revisions. Any revisions to mortality rates are footnoted on tables. Further information on population estimates, and their methodology is available.Nôl i'r tabl cynnwys
Published mortality statistics are based on deaths registered in England and Wales; no distinction is made between residents of England and Wales, residents of other UK countries or visitors. Deaths of those whose usual residence is outside England and Wales are included in total figures for England and Wales but excluded from any sub-division of England and Wales. Table 3 gives recent numbers of deaths to non-residents.
Until the 2010 data year for deaths, Office for National Statistics (ONS) assigned “area of usual residence” using a look-up product (the National Statistics Postcode Directory). This product associated postcodes with a number of geographical levels (for example, local authority or region). The postcode was allocated to each level of geography using a point-in-polygon methodology. Although this method is spatially accurate, it does not provide the stable building blocks needed for comparing geographies at different levels.
From the 2011 data year for deaths, we have assigned “area of usual residence” by first linking each postcode to an output area using this same point-in-polygon methodology and then linking to all higher geographies by using a population-weighted, best-fit look-up to output area. This means that postcodes are allocated to a higher geography based on where the output area population-weighted centroid lies. This is in line with the Geography Policy for National Statistics.
Switching to the new area allocation method had negligible impact on mortality statistics down to local authority level. However, the new method improved comparability of mortality statistics for subnational areas over time.
Until the 2016 data year, annual mortality statistics by area of usual residence were produced using the boundaries that were in place during the year the death was registered. For 2017 data onwards, figures produced in annual publications will be based on the latest boundaries available at the time of the first release of mortality statistics for that year and the same boundaries will be used throughout the annual packages. Figures produced in ad-hoc publications will be based on the latest boundaries available.
|2014 to 2018||Number, per cent|
|of which, deaths of||1,110||1,148||1,191||1,123||1,324|
|England and Wales|
|Percent of total||0.22||0.22||0.23||0.21||0.24|
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5.1 Usual residence of deceased
Details of the usual residence of the deceased are supplied by the informant to the registrar. Prior to 1993 there were rules determining the validity of one competing address over another for the purpose of registering the usual place of residence of the deceased. Previous annual reference volumes contain details of these rules. Since 1993, the informant can decide what address to give if more than one might be applicable.
Each year there are a small number of cases (around 0.1%) where no usual residence is provided by the informant. This may be because the deceased had no fixed abode or their address was unknown. In such cases, the usual residence is coded to where the death took place.
5.2 Place of occurrence
Due to improvements in the classification and coding of communal establishments, the place of death definition that we use was revised in 2011. These changes were implemented for 2010 mortality statistics. In particular, the classification was changed to specifically identify local authority and non-local authority care homes. The categories for NHS and non-NHS psychiatric hospitals, other hospitals and communal establishments for the care of the sick have also been replaced with a category for all hospitals. This reflects current user needs. Further improvements to how deaths are allocated to individual establishments and to how these are assigned to place of death categories is an ongoing exercise, which will improve the quality of this new classification.
The groups used for the place where death occurred are:
- local authority
- non-local authority
hospitals and communal establishments for the care of the sick (excluding psychiatric hospitals and hospices)
- other than NHS
- other than NHS
other communal establishments: includes schools, convents and monasteries, nurses’ homes, university and college halls of residence, young offender institutions, secure training centres, detention centres, prisons and remand homes
elsewhere: includes all places not covered elsewhere in this list and people who are pronounced dead on arrival at hospital
When a death occurs, the attending doctor completes a Medical Certificate of Cause of Death (MCCD) (Annex A). This is normally taken to the local registrar of births and deaths in the district in which the death occurred. Since April 1997, information may be provided to a registrar in a different district. This is known as the registration of deaths by declaration and is used mostly for the deaths of infants. Further details about deaths by declaration follow.
The certifying doctor must have seen the deceased during the last two weeks of life to complete a MCCD. This is normally delivered to the registrar by the informant (often a relative of the deceased), within five days of the date of death, as required by law. The majority of deaths are registered in this way. A specimen of the draft death entry completed by the registrar at the time of registration is reproduced at Annex B (old) and Annex I (new).
There are circumstances when a MCCD cannot be issued immediately, such as those deaths reported to a coroner, and the registration is consequently delayed. Some examples of these situations are given in the following sections.
6.1 Referral to the coroner
For some deaths the doctor may certify the cause and report the case to the coroner, or the registrar may report it. Deaths that should be referred to a coroner include those where:
the cause is unknown
the deceased was not seen by the certifying doctor either after death, or within the 14 days before death
the death was violent, or unnatural, or suspicious
the death may have been due to an accident (whenever it occurred)
the death may have been due to self-neglect or neglect by others
the death may have been due to an industrial disease, or related to the deceased’s employment
the death occurred during an operation or before recovery from the effects of an anaesthetic
the death may have been a suicide
the death occurred during or shortly after detention in police or prison custody
there was no doctor available who was legally qualified to certify the death
Following a significant increase in applications for Deprivation of Liberty Safeguards (DoLS) between 2013 and 2015, and a consequent increase in coroner investigations and inquests into deaths where a DoL was in place, it was recommended that these deaths were removed from the “in state detention” category (PDF, 77KB). Since changes to the Policing and Crime Act 2017, deaths under DoLS that occurred on or before 3 April 2017 should be treated outside the context of state detention and should only be reported to the coroner where one or more other conditions are met. We should therefore see a reversal of the trend for more inquests on natural deaths seen since 2009.
Coroners have a number of possible courses of action once a death has been referred. If they are satisfied that the death was due to natural causes and the cause has been correctly certified by a medical practitioner, the local registrar is notified (Form 100A – Annex D) and they can then register the death using the cause given on the MCCD. In rare cases where no medical certificate is available, the death will be registered as uncertified and the cause taken from Form 100A (Annex D).
Alternatively, the coroner may order a post-mortem examination. This may happen if the death was sudden and the cause unknown, if there was no doctor in attendance, or if the death has been referred directly to the coroner by the police. If the post-mortem shows unequivocally that the death was due to natural causes, the coroner notifies the registrar that they do not intend to hold an inquest (Form 100B – Annex E). In such cases, the cause of death given by the coroner on Form 100B is based on the information from the post-mortem held by the pathologist.
6.2 Coroners’ inquests
If an inquest is necessary, the death can usually be registered only after the inquest has taken place. In a small number of cases the coroner holds an inquest without a post-mortem. In most cases the inquest concludes the investigation and the death is then certified by the coroner (Form 99(REV) – Annex C). This provides the registrar with details of the deceased and the inquest findings as to cause of death.
If someone is to be charged with an offence in relation to the death, the coroner must adjourn the inquest until those legal proceedings are completed. Since 1978 (see Section 9.4) it has been possible to register these deaths at the time of adjournment, when the coroner issues Form 120 (Annex F). This form includes details of injuries that led to the death, but no conclusion. In the case of motor vehicle incidents, there is enough information to code the cause of death. Other deaths, such as possible homicides, are given a temporary code for underlying cause of death (U50.9) until final information becomes available. This is supplied by the coroner to the registrar on Form 121 (Annex G).
6.3 Legally uncertified deaths
A very small percentage of deaths remain legally uncertified (An analysis of legally uncertified deaths in England and Wales, 1979-2002). In recent years this figure has remained around 0.3% of all deaths registered in England and Wales.
We receive copies of at least one certificate of cause of death for these cases, which are registered and coded as normal. This group includes deaths for which the doctor, who completed the medical certificate, did not fulfil all the legal requirements for doing so. For example, where the doctor was not in attendance with the deceased during the last illness, or did not see the body, and the coroner did not order a post-mortem but issued Form 100A (Annex D). It also includes deaths of foreign military personnel in England and Wales where the certifying doctor was not a registered medical practitioner for the purpose of issuing medical certificates.
Table 4 gives relevant numbers of deaths by type of certification for 2015 to 2018.
|Certified by doctor:||425,033||80.2||419,178||79.8||433,682||81.3||444,724||82.1|
|With coroner not involved,||322,550||60.9||315,098||60.0||331,884||62.2||346,065||63.9|
|without post-mortem, or post mortem information missing.||321,535||60.7||314,177||59.8||330,959||62.1||345,119||63.7|
|After referral to coroner,||102,483||19.3||104,080||19.8||101,798||19.1||98,659||18.2|
|registered with no post-mortem or inquest, or post-mortem information missing.||102,181||19.3||103,744||19.8||101,545||19.0||98,375||18.2|
|Certified by coroner:|
Coroner's post-mortem held,
|with no inquest||67,619||12.8||63,693||12.1||63,651||11.9||63,713||11.8|
|Coroner's inquest completed, with or without post-mortem, or post-mortem information missing||34,440||6.5||39,333||7.5||32,789||6.1||29,920||5.5|
|Coroner's inquest adjourned||952||0.2||984||0.2||1,129||0.2||977||0.2|
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Since April 1997, it has been possible for relatives to provide information about the deceased to a registrar in a different district from that in which the death occurred. This is known as registration of a death by declaration and is similar to the arrangement already in place for births.
The registrar completes a Form 400 (Annex H), as well as the usual Form 310 (Annex B or Annex I) and sends them to a registrar in the district where the death took place; the second registrar then carries out the actual registration.
Between 2010 and 2012, the use of registration by declaration decreased, but has been gradually increasing, with 1% of deaths registered by declaration in 2018.
These are most likely to be infant deaths, especially neonates: about 7% of all neonatal deaths are registered by declaration. Linked to this is the fact that the most common cause for deaths registered by declaration is a congenital anomaly, with around 3% of deaths from such a cause registered in this way in recent years. The greater frequency for infant deaths is explained by the practice of referring infants or pregnant women with serious or unusual health problems to regional care units where appropriate, which may often be some distance from the parents’ home address.Nôl i'r tabl cynnwys
On 1 October 2014, the Presumption of Death Act 2013 (PDF, 258KB) came into force in England and Wales. This means that an application can be made to the High Court for a declaration (Annex J) that a missing person is presumed to be dead where the person who is missing is thought to have died or has not been known to be alive for a period of at least seven years.
|Annual dataset year for registrations||Total deaths||Number of presumed deaths|
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9.1 Coding the underlying cause of death
Automated cause coding
Since 1993, the majority (approximately 80%) of Office for National Statistics (ONS) mortality data have been coded by automatic cause coding software.
Specific text terms from the death certificate are converted to International Classification of Diseases (ICD) codes and then selection and modification rules (see later in this section) are used to assign the underlying cause of death. Using computer algorithms to apply rules increases the consistency and improves the international and temporal comparability of mortality statistics. The cause coding of deaths certified after inquest was done manually by experienced coders as the software could not code the free text format used by coroners.
International Classification of Diseases, Tenth Revision (ICD-10) was introduced in England and Wales in January 2001. Since then various amendments have been authorised by the World Health Organization (WHO). Amendments may (for example) correct errors in the software supporting automatic coding, accommodate new codes in response to new conditions, such as the H1N1 virus (swine flu) or incorporate advances in medical knowledge of the relationship between conditions.
Between 2001 and 2010, ONS used the Mortality Medical Data System (MMDS) ICD-10 version 2001.2 software provided by the United States National Center for Health Statistics (NCHS) to code cause of death. In January 2011, this was updated to version 2010, which incorporated most of the WHO amendments authorised up to 2009.
The main changes in ICD-10 version 2010 were amendments to the modification tables and selection rules. Overall, the impact of these changes is small although some cause groups are affected more than others. For further information, see the results of the bridge coding study. There is also another study looking at the impact on stillbirths and neonatal deaths.
On 1 January 2014, we changed the software used to code cause of death to a package called IRIS (version 2013). The development of IRIS was supported by Eurostat, the statistical office of the European Union and is now managed by the IRIS Institute hosted by the German Institute of Medical Documentation and Information in Cologne.
IRIS software version 2013 incorporates all official updates to ICD-10 approved by WHO, which were timetabled for implementation before 2014. These updates include changes to the use of codes within the neoplasms (cancer) chapter (ICD-10 codes C00 to D48). In addition a small number of changes were made to the coding of specific conditions, to bring previous coding practice in line with international coding rules and changes were made to the coding of neonatal deaths and stillbirths.
Further information on IRIS is available. There is also a study that looks into the impact of the coding changes on stillbirths and neonatal deaths.
The death certificate (Annex A) used in England and Wales is compatible with that recommended by WHO. It is set out in two parts. Part I gives the condition or sequence of conditions leading directly to death, while Part II gives details of any associated conditions that contributed to the death, but are not part of the causal sequence.
The selection of the underlying cause of death is based on ICD rules and is made from the condition or conditions reported by the certifier, as recorded on the certificate. The underlying cause of death is defined by WHO as:
the disease or injury that initiated the train of events directly leading to death
the circumstances of the accident or violence that produced the fatal injury
Deaths attributed to accidents, poisonings and violence are examined, firstly according to the underlying cause of death (external cause) and, secondly by the nature of injury, or main injury. External cause of injury codes are taken from Chapter XX of the ICD (prefixes U50.9 and V01 to Y89; where U50.9 is a temporary code and not included in Chapter XX) and nature of injury codes are from Chapter XIX (prefixes S00 to T98), or from a smaller number of other post-procedural codes not within Chapter XIX.
Selection and modification rules
The selection of the underlying cause of death is generally made from the condition or conditions entered in the lowest completed line of Part I of the Medical Certificate of Cause of Death (MCCD). If the death certificate has not been completed correctly – for example, if there is more than one cause on a single line with no indication of sequence, or the conditions entered are not an acceptable causal sequence – it becomes necessary to apply one or more of the selection rules in the ICD-10.
Even where the certificate has been completed properly, there are particular conditions, combinations or circumstances when modification rules have to be applied to select the correct underlying cause of death. On some death certificates, for example, when two or more causes are listed and then linked together, these may point to another cause (not mentioned directly on the certificate) as underlying. Cases of “inferred” underlying causes are few though and are most commonly related to diseases of the circulatory system and late effects of cerebrovascular disease. In other cases the underlying cause of death can be selected from Part II of the MCCD.
In summary, the purpose behind the selection and modification rules is to derive the most useful information from the death certificate and to do it uniformly so that:
data will be comparable between places and times
each death certificate produces one, and only one, underlying cause of death
Routine ONS mortality tables analyse the underlying cause of death. Coding rules ensure that each recorded item on the certificate is coded independently of all others on the same certificate. All mentioned causes have been coded routinely since 1993.
ICD-10 was implemented in England and Wales in 2001. The main differences between ICD-9 and ICD-10 are outlined in Results of the ICD-10 bridge coding study, England and Wales, 1999:
a change in the format of the code and expansion in the number of codes used
a movement of some diseases and conditions between broad groups or ICD chapters
changes to the rules governing the selection of the underlying cause of death, especially Rule 3, which had a large effect
The vast majority of deaths in ICD-9 remained in comparable chapters in ICD-10. However, there were some discontinuities in the data due to the application of new rules for assigning underlying cause in ICD-10, most notably for deaths due to pneumonia. Section 16.4 provides further details about sources of information on the changes to ICD-10.
Historically, the rule that changed cause of death statistics most was the introduction of Rule 3 (see Section 16.3 for further details). In ICD-10 the list of conditions affected by Rule 3 is more clearly defined than in ICD-9 and is also broader in scope.
Deaths from 1979 to 2000, which appear in tables containing historical data, are coded to ICD-9 and have been grouped to reflect ICD-10 categories. To achieve this broad comparability, the ranges of ICD-9 codes used for some of the groupings differ from those published in annual volumes prior to 2001. Particular causes affected include leukaemia, diseases of the liver and land transport accidents.
Note on coding of acute rheumatic fever (ICD-9 390 to 392, ICD-10 I00 to I02)
In 1999, we found that, in some circumstances, deaths from rheumatic and valvular heart diseases were wrongly coded to acute rheumatic fever by the automated cause coding system introduced in 1993. All deaths in 1998 and 1999 with any mention of acute rheumatic fever were checked and recoded manually if necessary. From 2000, routine checks were set in place to correct any deaths miscoded to acute rheumatic fever. Therefore, published data on deaths between 1993 and 1997 assigned to acute rheumatic fever should be regarded as highly unreliable.
Note on coding influenza due to identified avian or swine influenza virus (ICD-10 J09)
Following guidance from the World Health Organization (WHO), the ICD-10 code J09 “Influenza due to identified avian influenza virus” has been used to record H1N1 swine influenza. For ease of use, J09 has been renamed to “Influenza due to identified avian or swine influenza virus” in the mortality tables since 2009.
The number of deaths with an underlying cause of “Influenza due to identified avian or swine influenza virus” (J09) differ from figures reported by Public Health England (PHE).
9.2 Two codes for certain conditions
The “dagger and asterisk” system
ICD-10 has continued the system introduced in ICD-9 whereby there are two codes for diagnostic descriptions that contain information about both an underlying generalised disease and a local manifestation in a particular organ or site that is a clinical problem in its own right.
In such cases the underlying disease is given a dagger (†) code and the manifestation an asterisk (*) code. Conditions with dagger codes are used in assigning underlying causes. Conditions with asterisk codes are never used in this way so will not appear in tables.
Deaths where the underlying cause is assigned to an external cause (ICD-10 Chapter XX, U50.9 to Y89) are also assigned at least one nature of injury code (Chapter XIX, S00 to T98) or a post-procedural code not within Chapter XIX. This means it is possible to have more than one nature of injury code for a single death.
For example, a car occupant injured in a transport accident (V40 to V49) may have suffered a fracture to the skull (S02) and femur (S72), as well as injuries of the spleen (S36). However, it is necessary to select which one of the nature of injury codes is to be identified as the one causing death. This one cause code is referred to by ONS as the secondary cause. To do this, WHO provides guidelines or “rules” to ensure that the most useful information is derived from the death certificate and that it is done uniformly.
The move from ICD-9 to ICD-10 had an impact on the allocation of secondary causes. ONS published an assessment of this impact.
In ICD-10, when more than one body region is involved, coding is made to the relevant category of injuries involving multiple body regions (T00 to T07). Therefore, in the previous example of an occupant injured in a transport accident, under ICD-10 the secondary cause would be classified as “other specified injuries involving multiple body regions” (T06.8), whereas under ICD-9 the secondary cause would be more specifically classified as a fracture of the skull (ICD-9 800).
An update by WHO was implemented for 2014 data whereby, if more than one serious injury is reported on the relevant part of the certificate, the main injury must be selected from the Priority Ranking of ICD-10 Nature-of-Injury Codes (PDF, 554KB) list. The update indicates that when more than one of the serious injuries reported in the relevant part of the certificate have the same and highest rank, select the first mentioned of these injuries; however, prefer a specific injury over an injury from the block T00 to T07 (injuries involving multiple body regions) with the same priority rank.
Information on injuries is derived from the coroners’ forms that are supplied to ONS, in particular the coroner’s certificate of cause of death after inquest (Form 99 (Rev) A – Annex C). This form was revised in May 1993 to bring it into line with the MCCD and with WHO recommendations.
Because the revised form no longer includes specific questions about type of injury and parts of body injured, some coroners now often provide less detail than before. The result is that some deaths are assigned to residual codes for nature of injury. For example, in ICD-10 the statement “head injury” is coded to “unspecified injury of head” (S09.9), whereas with more detail it might be assigned to “fracture of skull and facial bones” (S02.n).
9.3 Final cause of death
The conditions mentioned on the death certificate are used to derive an underlying cause of death. In some cases, more information on cause of death may become available at a later stage after the death has been registered, such that the underlying cause may be subsequently amended.
Around 0.1% of deaths have their underlying cause amended (Table 6). This amended or final cause is used in mortality statistics. Sometimes the later information becomes available only after the annual extract has been taken. Users with access to individual records of deaths as shown in the public record (which is never amended) may consequently find some differences with published statistics.
|8||0.00~||Original 'Diseases of the respiratory system' cause amended for final cause|
|5||0.00~||Original 'Neoplasm' cause amended for final cause|
|10||0.00~||Original 'Diseases of the circulatory system' cause amended for final cause|
|9||0.00~||Other original cause amended for final cause|
|23||0||3-digit ICD-10 codes for original and final cause match|
|179||0||4-digit ICD-10 codes for original and final cause match|
|435||0.1||‘Pending conclusion’ deaths resolved and final cause submitted|
|540,245||99.9||No final cause information submitted (includes neonatal deaths)|
Download this table.xlsx .csv
In summary, further details on the causes of death can be obtained in one or other of the following ways.
Deaths certified by doctors may have their cause amended as a result of a post-mortem, or of tests initiated before death. The certifier sends this additional information directly to the cause coding team at ONS, where it is only used for statistical purposes and does not appear in the public record.
Less than 1% of deaths certified by a doctor have a post-mortem and in the majority of cases, the certified cause remains unchanged. In addition, ONS cause coders may contact the certifier for more information if the certificate is unclear or they cannot code the underlying cause; this is very rare.
When a death has been certified by a coroner after post-mortem (with no inquest), further information may be available once they have results of bacteriology or histopathology. This is also very rare.
Following an inquest, coroners may submit to ONS details of how a fatal accident occurred. This is rare, as coroners normally only certify the cause of death after their investigations are complete, so the first and only information ONS receives about these deaths is the final underlying cause.
Coroners may also provide a final underlying cause of death and conclusion much later for an accelerated registration following an adjourned inquest (see Section 9.4).
9.4 Accelerated registrations
On 1 January 1978, certain provisions of the Criminal Law Act 1977, the Coroners (Amendment) Rules 1977 and the Registration of Births, Deaths and Marriages (Amendment) Regulations 1977 came into force. There were two principal changes arising from the legislation.
Firstly, the duty of a coroner’s jury to name a person it finds guilty of causing a death and of a coroner to commit that person for trial, was abolished.
Secondly, in cases where there was an inquest adjournment, provision was made for the death to be registered at the time of adjournment instead of having to await the outcome of criminal proceedings, as previously. This provision is referred to as accelerated registration.
Accelerated registrations that are not transport incidents are assigned to code U50.9 (event awaiting determination of event) for events registered from 1 January 2007, or to code Y33.9 (other specified events, undetermined intent) for events registered up to the end of 2006. Most of these are eventually reassigned to assault (X85 to Y09), but the delays before this happens can affect the published figures in the under-estimation of deaths from assault (Death certification and the epidemiologist).
Accelerated registrations related to deaths involving motor vehicle incidents are assigned to a code in the range V01 to V89 (land transport accidents) if sufficient information is available on the coroner’s certificate of adjournment.
9.5 Assault and intentional self-harm
Numbers of deaths from assault (homicide in ICD-9)
It is possible to make alternative assessments about the number of deaths that may be attributed to assault. The two estimates presented in standard tables are:
the number coded to X85 to Y09; this is the basic ICD classification to which all assaults should eventually be assigned
the number coded to X85 to Y09, plus those coded to U50.9 (event awaiting determination of intent); this takes account of accelerated registrations, most of which are eventually coded to an assault code (see Section 9.4)
Numbers of deaths from intentional self-harm (suicide in ICD-9)
As with assault, it is possible to make two separate estimates of the number of deaths annually from intentional self-harm:
the number coded to X60 to X84; this is the basic ICD classification to which all definite intentional self-harm conclusions are assigned
the number coded to X60 to X84, plus those coded to Y10 to Y34 (event of undetermined intent); this takes account of most deaths where an open inquest conclusion was returned, but excludes all deaths that are pending investigation
For more information on the suicides definition please see the Suicides in the UK statistical bulletin.Nôl i'r tabl cynnwys
The cause of death codes shown in detailed cause of death tables are those where at least one death was coded to that underlying cause during the relevant reference period.
The Office for National Statistics (ONS) short list for cause of death is based on a standard tabulation list developed by ONS, in consultation with the Department of Health. This list of over 100 conditions was based on the following:
all conditions given in the World Health Organization (WHO) basic tabulation list; with the exception of a few conditions that are so rare as certified causes of death in England and Wales that they could safely be excluded from the list
totals for each International Classification of Diseases, Tenth Revision (ICD-10) chapter
conditions used in monitoring public health targets
other conditions often cited by ONS
The aim was to provide a standard listing for tables of mortality statistics containing conditions frequently referred to by all users of the data. In this way, users could find the same conditions in different tables and in different annual publications.
Many tables also contain statistics for conditions in the standard list as well as others of particular interest. The standard listing is given in the following table. Note that from 1993 to 2000, conditions related to HIV infection were coded to ICD-9 042 to 044. This replaced the previously used ICD-9 code of 279.1 (deficiency of cell-mediated immunity) for these conditions. From 2001, conditions related to HIV infection have been coded to the ICD-10 codes B20 to B24.
From 1 January 2007, a new ICD-10 code (U50.9) has been used by ONS for deaths involving adjourned inquests that would previously have been coded to Y33.9. This has made the tabulation of deaths from undetermined intent, and estimates of suicide, easier to produce.
|ICD-10 codes||Cause of death names|
|A00–R99, U00-Y89||All causes|
|A00–B99||I Certain infectious and parasitic diseases|
|A00–A09||Intestinal infectious diseases|
|B20–B24||Human immunodeficiency virus [HIV] disease|
|B90||Sequelae of tuberculosis|
|C00–C14||Malignant neoplasms of lip, oral cavity and pharynx|
|C15||Malignant neoplasm of oesophagus|
|C16||Malignant neoplasm of stomach|
|C18||Malignant neoplasm of colon|
|C19–C21||Malignant neoplasm of rectosigmoid junction, rectum and anus|
|C22||Malignant neoplasm of liver and intrahepatic bile ducts|
|C23–C24||Malignant neoplasm of gallbladder and biliary tract|
|C25||Malignant neoplasm of pancreas|
|C32||Malignant neoplasm of larynx|
|C33–C34||Malignant neoplasm of trachea, bronchus and lung|
|C43||Malignant melanoma of skin|
|C44||Other malignant neoplasms of skin|
|C50||Malignant neoplasm of breast|
|C53||Malignant neoplasm of cervix uteri|
|C54–C55||Malignant neoplasm of other and unspecified parts of uterus|
|C56||Malignant neoplasm of ovary|
|C61||Malignant neoplasm of prostate|
|C62||Malignant neoplasm of testis|
|C64||Malignant neoplasm of kidney, except renal pelvis|
|C67||Malignant neoplasm of bladder|
|C71||Malignant neoplasm of brain|
|C90||Multiple myeloma and malignant plasma cell neoplasms|
|C97||Malignant neoplasms of independent (primary) multiple sites|
|D00–D48||In situ and benign neoplasms, and neoplasms of uncertain or unknown behaviour|
|D50–D89||III Diseases of the blood and blood-forming organs and certain disorders involving the immune mechanism|
|E00–E90||IV Endocrine, nutritional and metabolic diseases|
|F00–F99||V Mental and behavioural disorders|
|F01, F03||Vascular and unspecified dementia|
|F10–F19||Mental and behavioural disorders due to psychoactive substance use|
|G00–G99||VI Diseases of the nervous system|
|G00, G03||Meningitis (excluding meningococcal)|
|G12.2||Motor neuron disease|
|H00–H59||VII Diseases of the eye and adnexa|
|H60–H95||VIII Diseases of the ear and mastoid process|
|I00–I99||IX Diseases of the circulatory system|
|I05–I09||Chronic rheumatic heart diseases|
|I20–I25||Ischaemic heart diseases|
|I21–I22||Acute myocardial infarction|
|I26–I51||Other heart diseases|
|I64||Stroke, not specified as haemorrhage or infarction|
|I71||Aortic aneurysm and dissection|
|J00–J99||X Diseases of the respiratory system|
|J09||Influenza due to certain identified influenza virus|
|J40–J44||Bronchitis, emphysema and other chronic obstructive pulmonary disease|
|K00–K93||XI Diseases of the digestive system|
|K25–K27||Gastric and duodenal ulcer|
|K57||Diverticular disease of intestine|
|K70–K77||Diseases of the liver|
|L00–L99||XII Diseases of the skin and subcutaneous tissue|
|M00–M99||XIII Diseases of the musculoskeletal system and connective tissue|
|M05-M06, M08||Rheumatoid arthritis and juvenile arthritis|
|N00–N99||XIV Diseases of the genitourinary system|
|N00–N15||Glomerular and renal tubulo-interstitial diseases|
|N40||Hyperplasia of prostate|
|O00–O99||XV Pregnancy, childbirth and the puerperium|
|P00–P96||XVI Certain conditions originating in the perinatal period|
|Q00–Q99||XVII Congenital malformations, deformations and chromosomal abnormalities|
|Q20–Q28||Congenital malformations of the circulatory system|
|R00–R99||XVIII Symptoms, signs and abnormal clinical and laboratory findings, not elsewhere classified|
|R95||Sudden infant death syndrome|
|R99||Other ill-defined and unspecified causes of mortality|
|S00–T98||XIX Injury, poisoning and certain other consequences of external causes|
|S00–S19||Injuries to the head and the neck|
|S20–S29||Injuries to the thorax|
|S30–S39||Injuries to the abdomen, lower back, lumbar spine and pelvis|
|S72||Fracture of femur|
|T20–T32||Burns and corrosions|
|T39.1||Poisoning by 4-Aminophenol derivatives|
|T40||Poisoning by narcotics and psychodysleptics [hallucinogens]|
|T42||Poisoning by antiepileptic, sedative-hypnotic and antiparkinsonism drugs|
|T43||Poisoning by psychotropic drugs, not elsewhere classified|
|T50.9||Poisoning by other and unspecified drugs, medicaments and biological substances|
|T51–T65||Toxic effects of substances chiefly nonmedicinal as to source|
|T58||Toxic effect of carbon monoxide|
|T75.1||Drowning and nonfatal submersion|
|V01–Y89 (inc U50.9)||XX External causes of morbidity and mortality|
|V01–V99, Y85||Transport accidents|
|V01–V89||Land transport accidents|
|W65–W74||Accidental drowning and submersion|
|X00–X09||Exposure to smoke, fire and flames|
|X40–X49||Accidental poisoning by and exposure to noxious substances|
|X41||Accidental poisoning by and exposure to antiepileptic, sedative-hypnotic, antiparkinsonism and psychotropic drugs, not elsewhere classified|
|X42||Accidental poisoning by and exposure to narcotics and psychodysleptics [hallucinogens], not elsewhere classified|
|X44||Accidental poisoning by and exposure to other and unspecified drugs, medicaments and biological substances|
|X59||Accidental exposure to unspecified factor|
|Y10–Y34||Event of undetermined intent|
|X60–X84, Y10–Y341||Intentional self-harm; and event of undetermined intent|
|U50.9, X85–Y091||Assault; death from injury or poisoning, event awaiting determination of intent (inquest adjourned)|
Download this table.xlsx .csv
The Stillbirth (Definition) Act 1992 defines a stillbirth as, “a child which has issued forth from its mother after the 24th week of pregnancy, and which did not at anytime after becoming completely expelled from its mother breathe or show other signs of life”.
This definition has been in use since 1 October 1992. Prior to this, the Births and Deaths Registration Act 1953 defined a stillbirth as previous, but at 28 or more weeks completed gestation. Figures for stillbirths from 1993 are, therefore, not comparable with those for previous years. From 28 May 2012, the restriction to register a stillbirth within three months from the date of occurrence has been removed and stillbirths can be registered at any time.
11.2 Infant deaths
Infant deaths (under one year) at various ages are defined as:
early neonatal – deaths under seven days
perinatal – stillbirths and early neonatal deaths
neonatal – deaths under 28 days
postneonatal – deaths between 28 days and one year
Linked data refers to infant death records that have been successfully matched to their corresponding birth record; see the annual publications Child mortality statistics, infant mortality (birth cohort) tables and Unexplained deaths in infancy for further details.
11.3 Neonatal deaths
The tabulations of deaths by cause exclude neonatal deaths (deaths of infants aged under 28 days). In January 1986, a neonatal death certificate was introduced, from which it is not possible to assign an underlying cause of death. This certificate follows recommendations of the World Health Organization (WHO) in the International Classification of Diseases (ICD) (WHO, 1992 to 1994), whereby causes of death are given separately in the following categories:
main diseases or conditions in fetus or infant
other diseases or conditions in fetus or infant
main maternal diseases or conditions affecting fetus or infant
other maternal diseases or conditions affecting fetus or infant
other relevant causes
While conditions arising in the mother that affected the fetus or infant could be mentioned on certificates prior to 1986, no provision was made for those cases in which the certifier considered that both maternal and fetal conditions contributed to the death. The certificate introduced in 1986 overcame this problem. However, since equal weighting is now given to main conditions in the fetus and in the mother, it is no longer possible to identify a single underlying cause of death for neonatal deaths (and stillbirths).
For this reason Office for National Statistics (ONS), together with a team of experts in the field, developed a hierarchical classification for classifying causes of neonatal deaths and stillbirths in ICD-10. This classification is known as “ONS cause groups”. More details can be found in Health Statistics Quarterly and the latest Child mortality statistics publication.Nôl i'r tabl cynnwys
Mortality statistics in England and Wales are derived from the registration of deaths certified by a doctor or a coroner. The data pass through a number of processes (Annex K) before becoming usable for analysis. These processes are complex and involve a wide range of people, organisations and computer systems.
To produce mortality outputs, annual extracts are taken from the deaths database. These extracts are then used to produce annual tables and files of individual death records for other government departments and health authorities, as provided for by relevant legislation.Nôl i'r tabl cynnwys
13.1 Completing medical certificates of cause of death
For around three-quarters of deaths, one of the doctors involved in the patient’s care for the illness from which they died completes a Medical Certificate of Cause of Death (MCCD). Many thousands of general practitioners (GPs), hospital consultants, junior doctors in training and doctors in other clinical posts all complete MCCDs.
The nature and amount of training they have had in death certification vary greatly. Not all medical schools in the UK include questions on death certification in their exams. However, “issuing death certificates” is included as a competency that newly qualified doctors should be able to demonstrate during their training in Foundation Years 1 and 2.
Doctors already in practice are required to keep their knowledge and skills up-to-date through continuous professional education. However, there are constant changes in clinical knowledge, practice and guidelines to keep abreast of, so death certification may not often be a priority.
Training materials on death certification developed by Office for National Statistics (ONS) in the late 1990s with the help and oversight of a wide range of stakeholders through the ONS Death Certification Advisory Group (DCAG) in the 1990s are available from our Titchfield office (see Section 1 for contact details). These include a short video, “Death Counts”, an associated training pack including test histories and pocket cards for distribution to GPs and hospital doctors.
There have been several well-publicised proposals for reform of death certification since the Shipman case in 1998. Legislation implementing the reform of the process of death certification in England and Wales is included in the Coroners and Justice Act 2009, which received Royal Ascent on 12 November 2009. This will reform the process of death certification by introducing a single unified system for both burials and cremations and appointing medical examiners to provide an independent scrutiny of the cause of death.
Guidance to doctors completing MCCDs in England and Wales was updated by the ONS DCAG in June 2005 and again in November 2007. The guidance explains best practice under current legislation and sets out numerous examples based on recent queries from certifiers and samples of good certification.
In 2005, the Department of Health (DH) notified all registered doctors of the existence of the new guidance through Chief Medical Officer’s (CMO) Update (CMO 2005). In 2007, the CMO again drew the attention of doctors and senior NHS managers to the guidance in a letter about deaths involving healthcare-associated infections.
Guidance is given to doctors completing MCCDs in England and Wales by DH under the Coroner and Justice Act 2009 and new guidance will be issued by DH following the implementation of the planned reforms. This guidance will be agreed by DH, ONS, General Register Office (GRO) and the National Medical Examiner when appointed.
Coroners certify about a quarter of all deaths. Coroners can only certify cause of death following a post-mortem by a pathologist, an inquest or both. Training for coroners is organised through the Ministry of Justice. The process of referral to a coroner and how referred deaths are dealt with varies between coroners’ areas.
13.2 Registration of the death
Data items other than the cause of death depend largely on information supplied by the informant. For deaths certified after inquest, police officers or other witnesses may supply this information, which cannot later be checked by the registrar. For some items of information, for example, occupation, there may be no absolute way of checking its accuracy. For others, validity (age and date of birth), or “reasonableness” (age and cause of death) may be checked. Some details may also be verified later, for example, date of birth, with records held at health service data sources.
13.3 Entry of data
Registration Service Software (RSS)
RSS was rewritten in 1998 and issued to Register Offices in 1999. It was replaced by the Registration Online (RON) system on 1 July 2009. The deaths statistical fields used in RSS were validated in three respects:
range: checking that codes fall into an expected range of values
data type: checking that text appears where it should and numeric values appear where they should
logic: cross-checking with values in one or more other fields
Cross-validations are carried out by checking logical consistency between various items recorded by the registrar. These include information collected on type of certification, referral to coroner, and whether a post-mortem was carried out.
Registration Online (RON)
In November 2006, a pilot for an online system of registering life events (RON) commenced in five registration districts. Following the success of this pilot, RON was implemented in most register offices on 26 March 2007. However, as a result of significant performance problems, the system was suspended on 10 April 2007 resulting in around half of registrars reverting back to using the previous electronic system, RSS.
From 8 May 2007, almost all register offices were submitting data electronically using either RON or RSS. Any remaining death registrations that were held only on paper at register offices were later entered onto the RON system by the General Register Office (GRO), or by the local registration service. RON was fully implemented in register offices on 1 July 2009.
13.4 Other checks made by the Registration Service
Checks are also made on death registration details at various times by registrars, superintendent registrars and account managers from GRO.
At the time of registration
When someone attends to register a death, the registrar is instructed to make the following checks:
a medical certificate (coroner’s document) is presented
the death is in their area
the death occurred within the last 12 months
the informant is qualified to give information
the correct medical certificate has been used
the certificate relates to the correct person
the certificate has been filled in properly – that is, it is signed, not amended in any way, the doctor’s qualifications filled in, the last date seen alive and whether or not the certifier saw the deceased after death is shown
the death does not need to be referred to the coroner
The registrar then carries out the registration and reviews the recorded detail with the informant before the register page is signed by the informant and registrar. The signed register page is normally a computer-generated print, replicating the detail held on computer, but when the computerised system is unavailable it is a handwritten page.
By superintendent registrars and account managers
Superintendent registrars carry out the following quarterly checks:
the Quarterly Certified Copy (QCC) entries agree with each register entry
the entries appear to be in sequence
there is a medical certificate or coroner’s form to accompany each death entry, as appropriate
each entry has been signed by an informant (if required) and by the registrar
for any manual entries a general check on any apparent erasure or illegibility
Account managers visit registration districts on a periodic basis and as part of the process will typically include the following inspection activity:
sitting in on actual registrations to check questioning technique
examining a sample of register entries and supporting documentation and draft entries
examination of computerised records held
14.1 Receipt of death registration data at Office for National Statistics (ONS) Titchfield office
Details of deaths are received from register offices electronically. Routine and automated checks are carried out on each file and the combined data are then loaded on to the deaths database. Regular receipt and diagnostic reports are produced, resulting in weekly contacts with the identified registrars to resolve any problems.
Examples of checks include:
identification of missing entries, so that death registration details are received in sequence
checks for duplicate records
checking for misplaced records, for example, verifying that each registrar is using the register allocated
for paper records – that date of death and date of registration are in the correct range
for paper records – records are checked for completeness prior to keying
checks on registrars whose returns have not been received by the fourth working day after the end of each week
14.2. Validation processes
Once on the database, the data are passed through a series of validation processes which are carried out automatically with any inconsistencies highlighted. Simple validations include examination of dates or employment status to ensure that they are likely. More complicated validations include checks for consistency between dates of birth, death and registration, or between age and marital status.
14.3 Routine checks in Titchfield
All deaths accepted onto the database that need routine coding are identified and coded as required by the Life Events Processing Branch (LEP). The detailed routine coding falls into five main areas:
postcoding to give usual residence of deceased
occupation, that is, the occupation of deceased, spouse, civil partner, where age of deceased is over 16 years (last occupation if retired); the occupation of the mother and/or father, where age of deceased is under 16 years
- communal establishment coding for place of death of deceased
place of birth of deceased
cause of death (see following checks)
Routine automated and manual checks of cause of death data are carried out on all records on a monthly basis. These include:
checking cause fields against inquest conclusion fields for compatibility
the presence or absence of original and final cause of death fields
codes for ONS cause groups are present for neonatal deaths and absent for non-neonatals (see Section 11.3)
validity of suicides at very young ages
mentioned conditions on death certificate are compatible with sex
the derived underlying cause of death is mentioned in Part I or Part II of the death certificate
Once coding of the cause of death is complete, checks are carried out on variables such as date of death, sex, year of birth, marital status and communal establishments. These checks evolve continuously during exploratory surveillance of data quality and some of these are later incorporated as routine checks.
14.4 Automated cause coding
Automated cause coding (see Section 9.1) is used to derive codes for each medical condition on the certificate and to identify the underlying cause. The accuracy of automated coding is checked regularly within data quality check requirements. Periodical reports on persistent coding problems are referred to a medical epidemiologist and authors of the software to highlight areas of concern for the new releases.
14.5 Checks before and after extraction of data for analysis
The first of these are carried out as a final check of what is held on the deaths database before an annual extract of data is taken. These comprise frequency checks for a range of fields, covering age, sex, underlying cause and area of residence. Also checked are possibly incorrect combinations of fields. Any apparent errors or inconsistencies result in checks of individual cases by coders who make amendments, as required. Some of these checks are also carried out routinely every month.
Further examinations are carried out once the data extract has been taken. They include checks similar to those done before extraction, to ensure that corrections made at that stage were properly carried out. After the annual extract used for mortality analyses has been produced, a further set of frequency counts and two-way tables are prepared to ensure that no new errors have been introduced. These checks are to ensure that the frequency distributions are both valid and plausible and broadly similar to those for the previous year’s data.
14.6 Checks on routine outputs
systematic checks of totals (row, column, and other) against known correct figures
checks of individual cells against correct figures
checking figures are consistent and plausible, that is, that they are what would be expected compared with the previous year’s tables
These checks are carried out by the Mortality Data Management Team in ONS’s Life Events Processing Branch.Nôl i'r tabl cynnwys
Death rates are derived from total deaths registered in England and Wales in the specific calendar year and corresponding mid-year population estimates.
Rates are not calculated where there are fewer than three deaths in a cell, denoted by (u). It is Office for National Statistics (ONS) practice not to calculate rates where there are fewer than three deaths in a cell, as rates based on such low numbers are susceptible to inaccurate interpretation.
Rates that are based on between 3 and 19 deaths are displayed in tables but are denoted by (u) as a warning to the user that their reliability as a measure may be affected by the small number of events.
Prior to July 2014, rates were not calculated where there were fewer than three deaths in a cell, denoted by (:). Rates in tables calculated from between 3 and 19 deaths were distinguished by italic type.
15.1 Crude death rate
Crude death rate is defined as total deaths per 1,000 population, or:
15.2 Age-specific death rates
Age-specific death rates may be calculated for each age group. These are defined as the number of deaths in the age group per 1,000 population in the same age group, or:
Mk = age-specific death rate for age group k
dk = deaths in age group k
pk = population in age group k (mid-year population estimates with the exception for the rate for those aged under 1 year old where the number of live births are used instead)
k = age
Age-specific rates may be calculated separately for males and females, or for both sexes combined.
15.3 Age-standardised mortality rates (ASMRs)
Age-standardised mortality rates (ASMRs) allow for differences in the age structure of populations and therefore allow valid comparisons to be made between geographic areas, over time and between sexes. Using the direct method, the age-standardised rate for a particular condition is that which would have occurred if the observed age-specific rates for the condition had applied in a given standard population.
Pk = standard population in sex/age group k
mk = observed mortality rate (deaths per million persons) in sex/age group k (mid-year population estimates are used to calculate all age-specific rates prior to standardisation)
k = age/sex group 0, 1 to 4, 5 to 9, ..., 85 to 89, 90 years and over
(From the 2015 data year ASMRs are calculated using population estimates for all age groups. Prior to the 2015 data year, the number of live births were used for the population at age under 1 year old. This change has had no significant impact on the rates.)
The age-standardised rate for “all causes” includes deaths at all ages, while the same rates for specific causes exclude neonatal deaths (infants aged under 28 days). Classification by underlying cause is not possible for neonatal deaths (see Section 11.3).
The standard population used is the European Standard Population (ESP); it is the same for both males and females. The ESP is a hypothetical population used to weight ASMRs.
The ESP was originally published in 1976 and was updated by Eurostat in 2013. The 2013 ESP structure allocates a greater weight to older ages to better reflect the ageing population. This change has had a significant impact; consequently ASMRs based on the 1976 ESP are not comparable with those based on the 2013 ESP. Further information about the change in methods is available.
Distribution of the European Standard Population for 1976 and 2013
|Age||1976 ESP1||2013 ESP2|
|01 to 04||6,400||4,000|
|05 to 09||7,000||5,500|
|10 to 14||7,000||5,500|
|15 to 19||7,000||5,500|
|20 to 24||7,000||6,000|
|25 to 29||7,000||6,000|
|30 to 34||7,000||6,500|
|35 to 39||7,000||7,000|
|40 to 44||7,000||7,000|
|45 to 49||7,000||7,000|
|50 to 54||7,000||7,000|
|55 to 59||6,000||6,500|
|60 to 64||5,000||6,000|
|65 to 69||4,000||5,500|
|70 to 74||3,000||5,000|
|75 to 79||2,000||4,000|
|80 to 84||1,000||2,500|
|85 and over||1,000||z|
|85 to 89||z||1,500|
|90 to 94||z||800|
|95 and over||z||200|
|1. Revision of the European Standard Population: Report of Eurostat's task force, Eurostat.|
|2. Revised European Standard Population 2013 (2013 ESP), Office for National Statistics.|
Download this table.xls
For National Statistics publication of mortality and cancer incidence, ONS is currently using an abridged ESP with a 90 years and over upper age band. National Statistics population estimates are only currently available for upper age limit of 90 years and over.
15.4 Perinatal mortality rate
Perinatal mortality rate is the number of deaths at ages under seven days (early neonatal deaths) plus stillbirths per 1,000 live births and stillbirths in the same period.
15.5 Infant mortality rate
Infant mortality rate is the number of deaths at ages under one year per 1,000 live births.
15.6 Standardised mortality ratios (SMRs)
Standardised mortality ratios (SMRs) compare mortality in one population with mortality in a “standard” population, while allowing for differences in age structure. Using the indirect method, the ratio is of “observed” to “expected” deaths. “Expected” deaths are the number that would have occurred if the sex and age-specific mortality rates of the standard year had applied to the population of interest.
SMRs for males and females separately are calculated using the appropriate sex- and age-specific standard rates. For persons, the SMRs are based on age-specific standard rates for males and females combined.
Thus: SMR equals (observed deaths divided by expected deaths) multiplied by 100
Pk = population in age/sex group k in population of interest (for example, an area, or period of time)
Mk = age-specific death rate for age group k for the standard population
k = age group (various groupings – see the following)
Unless otherwise stated, the standard mortality rates used are based on the most recent population estimates for England and Wales and the age groups used in the calculation are 0, 1 to 4 years, 5 to 9 years, 10 to 14 years, ..., 80 to 84 years, 85 years and over.
15.7 Years of life lost
Analyses of the effects of premature death assume that everyone may live to a defined age and that death at a younger age means that some future years of life have been lost. Calculations of years of life lost are made for deaths from selected causes with the aim of illustrating the relative effects from different diseases.
The “cut-off” ages used are 65, 75 and 85 years. These exclude deaths at high ages where the cause may be uncertain. This approach, but with a “cut-off” age of 65 years, is also used to calculate years of working life lost due to premature death.
From 2012 data year onwards, the period of working life covers ages 16 to 64 years for both males and females. Prior to 2012 data year, the period of working life covered ages 15 to 64 years. This change has a negligible impact on the comparability of statistics over time.
di, dj, dk = number of deaths in age group i/j/k
ai, aj, ak = age i/j/k + 0.5
A = 65 years or 75 years or 85 years
i = 0 to 64 years or 0 to 74 years or 0 to 84 years
j = 16 to 64 years
k = 0 to 15 years
Since there is no information on underlying cause of death when the deceased was aged under 28 days, the only category including both neonatal and non-neonatal deaths is that for “all causes”.
The mean age at death may be included as a further indicator of the relative effects of premature death. It is based on the sum of ages at death for each person.
ai = age + 0.5
di = number of deaths at age i
i = single years of age 0 to 119, 120 and over
d = total number of deaths
15.8 Potential years of life lost
Potential years of life lost (PYLL) is a measure of the potential number of years lost when a person dies prematurely from any cause. The basic concept of PYLL is that deaths at younger ages are weighted more heavily than those at older ages. The advantage in doing this is that deaths at younger ages may be seen as less important if cause-specific death rates were just used on their own in highlighting the burden of disease and injury, since conditions such as cancer and heart disease usually occur at older ages and have relatively high mortality rates.
To enable comparisons between areas and over time, age-standardised PYLL rates, also known as SYLL rates, are calculated. These rates represent the potential years of life lost if the population of England and Wales had the same population structure as the 2013 European Standard Population (ESP). SYLL rates are presented as years of life lost per 100,000 population.
PYLL is calculated as the sum of the mortality rate in each age group weighted by the potential number of years of life lost as indicated by remaining life expectancy for each age group. To calculate SYLL, this is then standardised to the 2013 ESP as shown in the equation:
i = age group (less than 1 year, 1 to 4 years, 5 to 9 years, 10 to 14 years, ..., 85 to 89 years, 90 years and over)
di = number of deaths in age group i
ai = weight, or average age-specific period life expectancy in age group i for a given year
ni = population in age group i
wi = number of individuals in the standard population in age group i
16.1 Redevelopment of mortality statistics
In the early 1990s, there was an extensive redevelopment of collection and processing systems for population, health and registration data – in particular, for births and deaths. For deaths this included: the progressive computerisation of registration in local offices, the move to a large deaths database to hold all deaths data from 1993 and the introduction of automated coding of cause of death.
Further information about these changes follows, with more details in the annual volume in the DH2 series for 1993 and 1994. Changes to the rules for selecting and coding cause of death brought England and Wales into line with international practice in 1993.
16.2 The deaths databases
In the deaths processing system that has been used within Office for National Statistics (ONS) since the early 1990s, there are two deaths databases, one for register information and the other for statistical data.
The registration database contains mainly textual information that appears on the death certificate. This corresponds to most of the details supplied by informants to a registrar, available to applicants requesting a copy of the death certificate.
The deaths statistical database contains only coded details of each death. When outputs are required, the statistical database can supply information on individual deaths or provide datasets for tabulation. The statistical database is continually updated and amended as further information becomes available.
In 1999, we developed a database to facilitate research into deaths related to drug poisoning and to aid the identification of specific substances involved in these deaths. The database currently contains data on all deaths on the annual data files for England and Wales between 1993 and the latest available year, where the underlying cause of death is regarded as resulting from drug-related poisoning, according to the current National Statistics definition. The database covers accidents and suicides involving drug poisoning, as well as poisonings due to drug abuse and drug dependence, but not other adverse effects of drugs.
The existing provisions for the registration of deaths and the processing, reporting and analysis of mortality data appear in different legislation that reflects the distinct and separate roles of the Registrar General for England and Wales and the UK Statistics Authority.
The Registrar General is guided by the following:
Population (Statistics) Act 1938: deals with the statistical information collected at registration
Births and Deaths Registration Act 1953: covers all aspects of the registration of births, stillbirths and deaths
Population (Statistics) Act 1960: makes further provision for collecting statistical detail at registration
Registration of Births and Deaths Regulations 1987: cover further aspects of the registration of births and deaths
Coroners Act 1988: sets out the procedures to be followed by coroners in handling deaths
Stillbirth (Definition) Act 1992: which altered the definition of a stillbirth to 24 or more weeks completed gestation, instead of the previous definition of 28 or more weeks
Deregulation (Stillbirth and Death Registration) Order 1996: allows for the registration of deaths by declaration
National Health Service Act 2006 (amended 2013) and National Health Service (Wales) Act 2006: consolidate legislation relating to the health service and separate provision of the health service in Wales from that in England; the Acts require notification of a birth or death to the local authority and the clinical commissioning group (local health board in Wales) where the birth or death occurred - both Acts include provision for the supply of information on individual deaths to the National Health Service by the Registrar General
Presumption of Death Act 2013: application can be made to the High Court for a declaration that a missing person is presumed to be dead where the person who is missing is thought to have died or has not been known to be alive for a period of at least seven years
The UK Statistics Authority is guided by the following:
Registration Service Act 1953: which in Section 19 required the Registrar General to produce annual abstracts of the number of live births, stillbirths and deaths
Statistics and Registration Service Act 2007: which transferred some of the statistical functions of the Registrar General, including the production of an annual abstract, to the Statistics Board, also known as the UK Statistics Authority, and Office for National Statistics, which became the executive office of the UK Statistics Authority; the 2007 Act also provides the Registrar General with a power to disclose any information about a birth, death or a stillbirth to the UK Statistics Authority for statistical purposes; it also enables the UK Statistics Authority to produce and publish statistics relating to any matter; the Act also includes a provision for the UK Statistics Authority to supply individual birth and death records to the Secretary of State for Health and certain NHS bodies
When the Statistics and Registration Service Act 2007 came into force on 1 April 2008, the arrangement where the National Statistician was also the Registrar General for England and Wales ended. At the same time, the General Register Office also stopped being part of ONS and was moved to the Identity and Passport Service. The National Health Service Central Register (NHSCR), formerly part of ONS, also transferred to the Health and Social Care Information Centre (HSCIC), which is now known as NHS Digital.
The responsibility for the production of mortality statistics is now a function of the UK Statistics Authority, which is required to produce an annual abstract of mortality statistics in order that the Minister for the Cabinet Office can lay it before Parliament.
16.4 Historical changes in mortality data
Users should note certain changes to the collection and coding of deaths data over the years may affect their interpretation of trends in mortality. These changes include the following:
Introduction of the Ninth Revision of the International Classification of Diseases. This replaced the Eighth Revision, used from 1968 to 1978. A 25% sample of death certificates for 1978 was selected and coded to both the Eighth and Ninth Revisions to give a guide to the effect of these changes on specific categories.
1981 to 1982
Industrial action taken by registration officers affected the quality of information about deaths from injury and poisoning. Details normally supplied by coroners were not available; the statistics were significantly affected. Figures on injury and poisoning for 1981, with the exception of suicides, should be treated with caution. Categories such as “transport accidents” and “homicide” were significantly understated whereas “non-specific accidents” and “undetermined injuries” were overstated. Statistics relating to nature of injury, were less affected by the absence of the coroners’ information. Although industrial action extended into 1982, the coroners’ information was collected retrospectively for that year, enabling more accurate figures to be produced. However, complete details to help code the cause of death were still unavailable in 1982. This resulted in more deaths than usual being assigned to “unspecified” categories.
Our interpretation of World Health Organization (WHO) Rule 3 was amended in the assignment of underlying cause of death. Series DR for 2006 has more detail. It resulted in a decrease in the numbers of deaths coded to pneumonia and a few other causes, and an increase in deaths from many other conditions – most of the latter being small increases. The background to this change is given in the annual volume DH2 number 11 for 1984, which includes a table assessing the numerical effects of changes, by underlying cause. Deaths from injury and poisoning were excluded from this exercise.
Since January 1986, registrars have recorded the following information on the draft entry form:
the date when the certifying doctor last saw the deceased alive
whether the deceased was seen after death by a medical practitioner
whether the death was reported to a coroner and by whom
whether the certifying practitioner indicated that death might have been linked to the deceased’s employment
The first three items had been recorded on the medical certificate for many years for legal and administrative purposes. The fourth resulted from legislation passed in 1985.
New stillbirth and neonatal death certificates were introduced in January 1986. The new neonatal certificate included both maternal and fetal conditions. This means that it is not possible to assign an underlying cause for deaths under 28 days. From 1986, therefore, tables of deaths by cause and age do not include neonates, although the all cause total for neonates is often given. Details of neonatal deaths by cause can be found in Child mortality statistics.
We reverted to the internationally accepted interpretation of Rule 3 operating in England and Wales before 1984 (see Section 16.2).
Redevelopment of our collection and processing systems, which took effect on published mortality data from January 1993. Changes included:
the computerisation of registration, with registrars in most local offices entering details on computers and supplying data to ONS on floppy disk
the automation of cause of death coding, so that procedures for assigning codes to underlying cause are now automatic for about 80% of all deaths but not used for deaths certified after inquest
the use of a dynamic database to hold all deaths data, for easy retrieval of up-to-date information; these and other changes are described in Section 12 and in more detail in Death certification and the epidemiologist
A revised coroner’s certificate of cause of death after inquest was introduced in May 1993, which resulted in less detail for many deaths from injury and poisoning (International Classification of Diseases, Ninth Revision (ICD-9) E800 to E999) – both for the description of injury sustained and for the classification of some suicides.
Following the introduction of the revised certificate, problems were identified relating to the processing of deaths certified after inquest due to the non-receipt of some data that contained additional detail about some accidental deaths. This resulted in more deaths being assigned to residual categories such as “other and unspecified causes” (ICD-9 E928.9). For this reason, the number of deaths coded to suicide and self-inflicted poisoning by motor vehicle gas exhaust (ICD-9 E952.0) declined substantially, while those from suicide and self-inflicted poisoning by other carbon monoxide (ICD-9 E952.1) rose.
To resolve this problem, we amended our systems and manually coded all deaths that resulted in a coroner’s inquest or adjourned inquest. Data were re-coded where necessary for 1993 and 1994. Changes were concentrated in the external causes of the ICD, while the effect on other causes was limited.
Ending of medical enquiries to obtain more precise information on the underlying cause of death.
Provision for registration of a death by declaration was introduced in April 1997, whereby details of a death could be supplied to a registrar in a district other than that where the death took place. Analysis shows that this provision is most likely to be used for deaths of infants and for neonatal deaths in particular.
Introduction of the Tenth Revision of the International Classification of Diseases (ICD-10) for coding cause of death on 1 January 2001. This replaced the Ninth Revision used from 1979 to 2000. There are some significant differences between the ICD versions. The main differences are:
a change in format of the code and an expansion in the number of codes used
a movement of some diseases and conditions between broad groups called ICD chapters
changes to the rules governing the selection and coding of the underlying cause of death, especially Rule 3, which has had a large effect
We coded the 1999 registration dataset to both the Ninth and Tenth Revisions to give a guide to the effect of changes on specific categories of cause of death. Results of the ICD-10 bridge coding study, England and Wales, 1999 were published in 2002. Research specifically examining the effect on injury and poisoning was published in The effect of the introduction of ICD-10 on trends in mortality from injury and poisoning in England and Wales.
Further information about Understanding the changes to mortality statistics following the move to coding cause of death to ICD-10 is also available.
Introduction of the General Register Office Network (GRONET) to Register Offices began, allowing for births and deaths registration details to be sent directly to ONS via email.
Introduction of Registration Online (RON) pilot areas enabling registrars to record births, stillbirths, deaths and civil partnerships online instead of using Registration Service Software (RSS).
RON was implemented and due to significant performance problems suspended. This resulted in around half the registrars reverting back to using the previous electronic system, RSS.
RON was fully implemented on 1 July 2009. Of all registrations in 2009, there were 83% recorded on RON.
All deaths recorded using RON.
In January 2011, the software used for cause of death coding was updated from the International Classification of Diseases, Tenth Revision (ICD-10) version 2001.2 to version 2010. The main changes in ICD-10 version 2010 are amendments to the modification tables and selection rules. Modification tables and selection rules are used to ascertain a causal sequence and consistently assign underlying cause of death from the conditions recorded on the death certificate. Overall, the impact of these changes is small although some cause groups are affected more than others. For further information, see the results of the bridge coding study. There is also another study looking at the impact on stillbirths and neonatal deaths.
On 1 January 2014, the software used to code cause of death was changed. The new IRIS software version 2013 incorporates official updates to ICD-10 that are approved by WHO. Further information on IRIS can be found in Section 9.1. A dual coding study looked at the impact on mortality statistics; a further study looked into the impact of the coding changes on stillbirths and neonatal deaths.
On 1 October 2014, the Presumption of Death Act 2013 came into force in England and Wales. This means that an application can be made to the High Court for a declaration that a missing person is presumed to be dead where the person who is missing is thought to have died or has not been known to be alive for a period of at least seven years.
Changes to the Policing and Crime Act 2017 removed the requirement for a coroner’s inquest for every death where a Deprivation of Liberty Safeguard (DoLS) was in place. Deaths under DoLS, that occurred on or before 3 April 2017 should be treated outside the context of state detention and should only be reported to the coroner where one or more other conditions are met. This should result in a decrease in the number of inquests for natural deaths.Nôl i'r tabl cynnwys
The process by which a death can be registered at the time of adjournment of an inquest instead of having to await the outcome of criminal proceedings.
A statistical measure to allow more precise comparisons between two or more populations by eliminating the effects in age structure by using a “standard population”.
The dataset taken from the main deaths database from which tabulations are derived. Sometimes it is referred to as the “standard” extract.
The ICD-10 terminology referring to homicide and injuries inflicted by another person with intent to injure or kill, by any means (excluding deaths from legal intervention and operations of war).
An exercise in which the same group of deaths are independently classified according to two different classifications or coding methods.
A measure, expressed as a ratio, indicating the net effect of the change in classification (from ICD-9 to ICD-10) on a particular cause of death.
Public official responsible for the investigation of violent, sudden or suspicious deaths.
Death Certification Advisory Group.
The method by which an informant can register a death in a different district from that in which the death occurred.
The coding of the same data twice, using different methods of coding in order to assess inconsistencies.
Relating to infants aged under seven days.
A person concerned with the incidence and distribution of diseases and other factors, including the environment, relating to health.
Death resulting from accident or violence. An alternative term for the underlying cause of death. ICD codes from Chapter XX; see Secondary causes.
General Register Office, located in Southport, England.
ONS’s method for classifying the causes of neonatal deaths and stillbirths using groups of ICD codes referred to as “ONS cause groups”.
The person who provides the registrar with the information required to register a death.
Inquiry into the cause of an unexplained, sudden or violent death held by a coroner.
Life Events Processing Branch at ONS.
Medical Certificate of Cause of Death.
Rules used in ICD-10 to select the correct underlying cause of death.
Medical Mortality Data Software developed by the NCHS in the USA.
National Center for Health Statistics, USA.
Relating to infants aged under 28 days.
National Health Service Central Register.
Office for National Statistics.
Includes stillbirths and early neonatal deaths.
Quarterly Certified Copy. Copies made of each Register, sent to the GRO at Southport.
Statutory officer responsible for the registration of births, deaths and marriages.
Statutory appointment with responsibility for the administration of the Registration Acts in England and Wales, and other related functions as specified by the relevant legislation.
Registration Online. A web-based system, which enables registrars to record births, stillbirths, deaths, marriages and civil partnerships online.
Registration Service Software. System of collecting data electronically at the registration of a birth or death. Used prior to RON.
One of the rules used to select the correct underlying cause of death; its different use in ICD-10 results in significant differences from ICD-9 for some causes; see Selection rules.
The nature of injury, or main injury, that caused death (where the underlying cause is assigned to an external cause from Chapter XX in ICD-10, V01 to Y89). Nature of injury codes are taken mostly from Chapter XIX (prefixes S and T).
Rules used in the ICD to determine the correct selection of the underlying cause of death; see Rule 3.
A condition (or conditions) reported as the result of a previous injury – a “late effect” (under ICD-9) or that occurs as a late effect one year or more after the originating event.
Used in the calculation of the age-standardised death rates; an element of the population (such as age and sex) is “held constant” to control its effect, for example, the European Standard.
Refer to the Stillbirth (Definition) Act 1992; a child born after 24 or more weeks completed gestation who did not show any signs of life at any time after being born.
Statutory officer with responsibilities relating to births, deaths, marriage and other registration functions, as specified in the relevant legislation.
UK Statistics Authority
The UK Statistics Authority is an independent body operating at arms’ length from government as a non-ministerial department, directly accountable to Parliament. It was established on 1 April 2008 by the Statistics and Registration Service Act 2007.
Underlying cause of death
“The disease or injury which initiated the train of morbid events leading directly to death, or the circumstances of the accident or violence which produced the fatal injury” in accordance with the rules of the International Classification of Diseases.
Vital Statistics Outputs Branch at ONS.
World Health Organization.Nôl i'r tabl cynnwys
Manylion cyswllt ar gyfer y Methodoleg
Ffôn: +44 (0)1633 459635
- Annex A - Medical certificate of cause of death
- Annex B Draft entry form previously used for registering deaths
- Annex C - Coroners certificate after inquest
- Annex D - Notification to the registrar by the coroner that he does not consider it necessary to hold an inquest - no post-mortem held
- Annex E - Notification to the registrar by the coroner that he does not consider it necessary to hold an inquest - port-mortem held
- Annex F - Coroner's certificate after inquest adjourned
- Annex G - Coroner's certificate (reporting on action subsequent to an adjourned inquest)
- Annex H - Declaration of particulars for the registration of a death
- Annex I - Draft entry form used by registrars for registering deaths online
- Annex J - Presumption of death certificate
- Annex K - Flow chart of deaths process