FOI REF: FOI-2023-1486

You asked

Please provide mortality and case fatality from 2000 to 2023 on subarachnoid haemorrhage in the UK by sex/age group.

We said

Thank you for your request.

We are responsible for the production of mortality data for England and Wales, this is driven by information collected from the death certificate at death registration. National Records Scotland (NRS) and Northern Ireland Statistics and Research Agency (NISRA) are responsible for statistics pertaining to Scotland and Northern Ireland. They can be contacted at foi@nrscotland.gov.uk and info@nisra.gov.uk respectively.

We produce statistics for deaths which occur in England and Wales, using the information provided during the registration of a death. Cause of death is coded using version 10 of the International Classification of Diseases (ICD-10).   

From all of these causes an underlying cause of death is selected using ICD-10 coding rules. The underlying cause of death is defined by WHO as:  

  • the disease or injury that initiated the train of events directly leading to death,   

or  

  • the circumstances of the accident or violence that produced the fatal injury.  

For deaths due to and involving a subarachnoid haemorrhage we use the ICD-10 code I61.  

The interactive webservice NOMIS will provide deaths in England and Wales where I61 is the underlying cause of death. NOMIS will also provide total deaths in England and Wales for comparison.  

If you wish to extract this information, please see the following instructions:   

  • Select Query data.  

  • Select Mortality data.   

  • Select period – 2013 to 2021  

  • Select the geography (England and Wales, regional or by local authority).  

  • Select Age – All ages or 5-year age bands.   

  • Select Sex – Total or Male/Female  

  • Select rates – All deaths, rates or percentage of population for example.  

  • Select cause of death (ICD10 code search is available). Type I61 

  • Select format (Excel or CSV for example)

2022 data will be available in NOMIS late 2023 and is therefore exempt under Section 22(1) of the Freedom of Information Act 2000. As a central government department and producer of official statistics, we need to have the freedom to be able to determine our own publication timetables. This is to allow us to deal with the necessary preparation, administration and context of publications. It would be unreasonable to consider disclosure when to do so would undermine our functions.

This exemption is subject to a public interest test. We recognise the desirability of information being freely available and this is considered by ONS when publication schedules are set in accordance with the Code of Practice for Statistics. The need for timely data must be balanced against the practicalities of applying statistical skill and judgement to produce the high quality, assured data needed to inform decision-making. If this balance is incorrectly applied, then we run the risk of decisions being based on inaccurate data which is arguably not in the public interest.  This will have an impact on public trust in official statistics in a time when accuracy of official statistics is more important to the public than ever before.