FOI reference: FOI-2024-2329
You asked
I am looking for the following data:
- The total number of glioblastoma multiforme GBM cases over the last 10 years, broken down yearly
- Demographic data for GBM cases, including age, gender, ethnicity, and deprivation index/socio-economic data (if available)
- If possible, are you able to provide the initial postcode of patients to assist in further geographic analysis?
- The total population per year to correlate with the incidence data.
I understand that the ICD-10 code for GBMs is C71.9, which also covers other malignant brain tumours. Are you aware of a way to isolate the data specifically for glioblastoma multiforme within this code?
We said
Thank you for your request.
Unfortunately, we do not hold data on the prevalence of diagnosis of diseases. You can contact NHS England for information on cancer diagnosis via england.contactus@nhs.net
The total population for the UK and its constituent countries can be found here.
We do hold mortality data by cause of death – these data are produced using ICD-10 codes. The ICD-10 code C71.9 refers to "Malignant neoplasm: brain unspecified". We are unfortunately unable to code and produce data at a lower level, as the coding framework available does not allow us to do this. Our apologies that we could not be of more help in this instance.
If you have any questions about the above advice, please contact health.data@ons.gov.uk