FOI REF: FOI/2023/5015

You asked

Please tell me the number of newly diagnosed cases of PANS ("Paediatric Acute-onset Neuropsychiatric Syndrome") & PANDAS ("Paediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections" in the UK.

For 2020, 2021 & 2022

We said

Thank you for your request. 

We do not hold data relating to Paediatric Acute-onset Neuropsychiatric Syndrome & PANDAS Paediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections in children or adults in the United Kingdom. 

For England, this data would be held by NHS Digital who can be contacted on enquiries@nhsdigital.nhs.uk

For Wales, this data is published by Public Health Wales who can be contacted on  foi.phw@wales.nhs.uk

For Scotland, this data is published by Public Health Scotland. Please use Your FOI request - Freedom of Information (FOI) -  Public Health Scotland to submit a request. 

For Northern Ireland, please contact Department of Health (health-ni.gov.uk) who can be contacted at FOI@health-ni.gov.uk.